Thursday, August 2, 2012

Zoe's Birth




Zoe's birth was less than ideal in many ways, but it was what it was. This post is part of a letter (with names removed of course) that I wrote to tell my doctor and other applicable staff at the hospital, about the night Zoe was born.  I was encouraged to write it by a grief support person who knew that this was not the norm at our hospital, in order to bring change where it was needed. I no longer feel angry about it and I have chosen to forgive and ask God to bring healing and peace...Here is her birth story...

Our story begins when my husband and I found out the middle of April that we were expecting our seventh baby. This would be our fourth baby here on earth with us as three of our babies are already in heaven. To say we were excited is an understatement. This was to be our last child. The completion of our family unit. Everything was going fine as the pregnancy progressed. The baby was perfectly normal and healthy according to all ultrasounds and check-ups. We were hoping for another little girl, but of course would have been very happy with a little boy too.
I had my twelve week ultrasound and the baby was moving lots, jumping around, and the heartbeat was perfect. The baby even appeared to wave at us once during the ultrasound. We got some beautiful pictures that day that I am very thankful for as that is almost all we have left of her.

My 20 week ultrasound was scheduled for July 20th. Our whole family was very anxious to find out if this new member of our family was going to be a boy or a girl and to have a glimpse of this blessing of life on the ultrasound screen again. When I went for the ultrasound that Tuesday, I never would have guessed the grief and devastation that would follow. My 8 year old daughter came with me to the ultrasound because she wanted to be there when I found out if it was a sister or a brother for her. The Dr did some measuring and we were trying so hard to be patient. Then the worst words I have heard in my life came out of his mouth. He said "I have some bad news. There is no heartbeat, I am really sorry." I thought I MUST not have heard him right. There must be a mistake. He must be kidding, but how could he joke about something like this. I looked at his eyes, they were very serious, I said "Pardon me?" He repeated the information. It felt as though all the air had been taken out of the room and I was falling into a dark hole. I could not stop the tears. He asked if there had been any indication of a miscarriage. I said no, this had been a completely normal healthy pregnancy so far. I asked if he was sure and he explained his diagnosis. Time from that moment on has become very surreal to me.

In the days following the ultrasound, we prayed for a miracle for our baby. Desperately hoping, as I am sure any parent in our situation does, that something would change or that this was all a big mistake. An appointment was made for me with my family Dr and through consultations with the two specialists, it was decided that it was safe for me to continue carrying my baby for up to two more weeks, as long as no other complications arose. I did not want another D&C unless it was absolutely necessary, as I regretted that decision with my other miscarriages. I wanted to deliver my baby in the way that she was supposed to come into this world, not have her removed from my body. I did not want to be induced either because I knew that my body could handle the delivery and wanted our baby to be born in it's own time.

I talked with my Doula, with others who had been through this and read people's stories to try to prepare myself for the insurmountable, unthinkable task that was in front of us. We had not been here before.  We have delivered live babies, I knew what to expect there, but never one who has already passed away.  I did not know what we were going to see or how this was going to feel.  I read many stories about how couples, even though they are going through one of the hardest, most horrible times of their lives, are able to have some items that help them remember their baby. They are given pictures, footprints, hand prints, gown, blanket, hat and memorabilia from the birth of their baby. These things give them some measure of comfort and something tangible to say that their baby existed.

If that indeed was how our birth experience would have gone, then at least I would have something that had been in contact with her to hold onto now and remember our little Zoe by. That is her name....Zoe. To us, she was not just "the products of conception," "the fetus" or "the IUFD" as the medical profession calls her. She was our much desired, anxiously awaited, precious, beloved baby girl. She was Jinaea, Jaron and Kyler's sister that they were so excited to have coming as part of our family.
She already had an identity to us and was very much a big part of our lives in the 22 weeks she was on earth.

I started experiencing cramping and some bleeding on the morning of Aug 2nd, at 22 weeks. We went into the hospital right away as my family Dr. had instructed us to. We were expecting to be delivering our little baby soon but desperately wishing the outcome was going to be different. We were sent to Emerg. The nurse in Emerg took my papers and listened while we explained our situation. She was very kind and caring. We were told to wait out in the waiting room and they would be with us as soon as they could. Moments later she returned to tell us we were to go up to the labor and delivery ward because the specialist that was on wanted to see us there.

When we arrived on upstairs and gave my papers to the nurse, it seemed that she was not very happy about having us there. She was a bit abrupt and said she didn't know where to "put" me. She said "It is going to be awhile before the Dr. can see you as he is finishing up a procedure." We said that was fine, we didn‘t mind waiting. She then said "Follow me, you can wait in here I guess." She took us into the non-stress test room, but then said that if we wanted we could wait in the sitting room around the corner because it would be awhile. It was not so much her words but her lack of a smile and lack of kindness in her voice that made me feel unwelcome. I thought that surely if she knew what we were there for, that she would treat us with a bit more kindness. We waited for about an hour for the OB/GYN and when he arrived we went back into the non-stress test room.

The OB/GYN was very kind and sympathetic, apologizing for our loss more than once. He quietly talked to us about what we were facing, asked me some questions and told me he would examine me to see if I was dilated. With many tears and my heart aching, I climbed onto the bed. After examining me, he determined that I was not yet dilated, but something was definitely happening as far as the bleeding was concerned. He said that because there was no way for them to predict how long it would take for the baby to come, that I could wait at home until we were closer. My husband and I agreed that we would go home and wait. He again said he was sorry for our loss and that if we had any questions we could call. We went out into the hall after I got dressed. The same nurse who had escorted us in then asked me to follow her back into the room. She said she needed to take my blood pressure. She got out the blood pressure cuff and at that point she did say she was sorry about our loss and if we had any questions to call. While she was doing my blood pressure, with what sounded like annoyance in her voice, she said "Now when you come back in to deliver, you need to go to Emerg. DO NOT (strong emphasis was put on these words) come back to Women's Health because you will get sent back down again and we wouldn't want you to have to be shifted between departments now would we." She put things away and then again, before I walked out the door, she repeated " Make sure you go to Emerg, you do not need to come up here when you return." Again, it was not so much the words that she used, but the tone with which she said them.

I felt very much like she did not want me on her ward, even though the situation I was dealing with seemed to belong there. That is where women go to deliver a baby after all. I left there feeling very small, unwelcome and like I was an inconvenience to her.
We headed home to await the event we were so wanting to not happen this way, praying for a miracle even still. My contractions strengthened and came more often as the afternoon went on. I swayed through them, remembering back to my previous labors, tears pouring down my face knowing what was coming. Shortly after supper, I went to the washroom and felt pressure. Zoe had moved into the birth canal and if I pushed, she was going to be born. I “held her in” with my hand and called my husband. We phoned Women's Health to see if we should come in or deliver her at home. They said to come in, and to bring the "products of conception" with us. My husband repeated that the baby was not born yet. I wanted to scream. I wanted to say our baby is not just the products of conception. She is my BABY. She is a person and she is a member of our family. At least give her that much dignity. My heart begged, please do not call her that again! My husband helped me into the van and we headed to the hospital. 

We found a wheelchair as soon as we got in the front door and my husband wheeled me to admitting. We registered again at admitting after telling the lady at the desk what was happening. She handed me my papers and said to head up to Women's Health. I told her that I had been in that morning and was told that I was not to go up to Women's Health, but that I had to go to Emergency when I came back in. She made a phone call, I believe it was to Emerg and was told that yes I needed to go up to Women's Health. I said "Ok if you are sure." 

My husband pushed me to the elevator and we went up to Women's Health. The elevator doors opened. Scared and agonizing over what we were about to go through, we made our way around the corner to the nurse's station. The nurse from that morning was standing there by the desk with the other nurses. When her eyes made contact with mine, there was no welcome in her eyes. I slowly held out my paper to her hoping that she would take them and that this would not have to be any more horrible than it already felt. Her response to me was, "I told you not to come up here when you came back. They have to see you in Emerg. You belong down in Emerg not here. I am sorry but you are going to have to go back down." Her sorry was very empty and cold. I said "We registered at admitting and the lady told us to come here." She said "No, I told you to go to Emerg." So there I am, trying not to push as the contractions still continued and praying that my baby won’t be born into my pants, sitting in a wheelchair. The world started swirling around me. I looked down the hall thinking, maybe the rooms are all full up here and they just don't have room for us right now. I was hoping to find a valid reason of some sort for her sending us away, because surely there has to be something other than this. The delivery rooms were all dark, doors open and did not appear to be in use at all. I could see that the hopes of a birth with dignity and honor for my baby, and memories, as good as they could be, were going down the drain. My husband turned the wheelchair around. We headed back to the elevator, tears poured down our faces, hearts breaking and hurting even more because we had just been treated like our baby was not worthy of being delivered in a labor and delivery room. I felt broken, humiliated, let down, embarrassed, hurt, angry and very disappointed. I wanted to tell her that she could at the very least have been more sensitive and kind in the way she spoke to us given the situation.
There was no "I realize this is difficult and I am really sorry about this, but we just can't deliver your baby up here," or even "let me make a phone call just to confirm why they think you need to be up here." She just sent us away. 

We went down to Emerg. Let me just stop and say right now, thank God for the nurse that we had talked to in Emerg earlier in the day. She was still on shift that evening when we arrived. She was wonderful. She was so kind and sympathetic. I told her that Women's Health had sent us back down and she looked puzzled, but took my paper anyway. I told her that the baby was ready to come out at any moment if I pushed at all. She took me right away into a room and got me a gown. I told her I just wanted to be able to hold the baby and say goodbye once the delivery was done. She promised that she would make that happen and then, with tears filling her eyes, said how sorry she was for my loss. She assured me that she was going to be there to help me through this. Then she helped me onto the bed to deliver our baby. The baby came out almost immediately when I pushed, but then the bleeding started to get worse. The placenta was not delivering easily and the bleeding was getting heavier. She assured me that my baby was still there on the bed and I could hold the baby but they needed to get the bleeding under control before they could let me do that. 

She talked to me the whole time and was very reassuring. The Dr and nurses started rushing around a little more quickly and my fear level was starting to climb a bit because I had hemorrhaged a few times before. I almost died the last time and did not want that to happen again. They did not have the pitocin in Emerg and so had to call up to Women's Health to have it sent down. Time was ticking, a nurse said "Did they say they were sending it down? They are not here yet." Someone responded "Yes they said they were sending them right away." If I had been up on Women's Health in the first place, that wouldn't have been a problem. The medication would have been easily accessible. The pitocin did come finally and they gave me the needle and put something into my IV which they had started while they were waiting. The Dr. working Emerg that night said that I would probably need a D&C as the placenta was still not delivering despite their efforts. I was told they were calling up to Women's Health and I would be transferred up there to go for the D&C. A stretcher was brought to my door, they moved the chair and table to make space for it to be brought into the room. Suddenly a nurse appears at the door saying Women’s Health had just phoned and said they don't want her transferred there, that she does not have to go from there for the D&C. They say she should be sent straight from here. My Emerg nurse said "The OB/GYN was going to see her upstairs" The nurse at the door said "Well let me call again." Again I was not sure why they seemed so set on not having me up on Women's Health and was left feeling like an inconvenience to them.

In the next few minutes the placenta did deliver on it's own, for which I was grateful. My angel nurse then did her best with what she had available to her in Emerg. She wrapped Zoe in a clean blue disposable hospital bed pad. I can't help but think that if the delivery had occurred in a delivery room, that a baby blanket would have been available to wrap her in. After a little while she brought a towel and laid Zoe in that instead. She said we could have whatever time we needed with Zoe and left the room to give us privacy. We marvelled at how tiny everything was and how perfect.  Right down to her little fingers, toes and nails. The rest of the time we had with her feels too private to share in this letter so I will leave it out. The OB/GYN came down to see me in Emerg and talked us through the next steps, the autopsy, the genetic testing options. He was very compassionate. With his words and actions he cared about us and our situation. It was very much appreciated. 

I don’t know for sure, but I think that if Zoe had been delivered upstairs, they could have done her footprints and hand prints for us. Maybe she could have had a little hat on, maybe not. All the things that I know other mommy's got to take home with them from the hospital as mementos of the short time they did get to have with their baby, I was left without. I ended up having to stay overnight because of blood pressure issues and in the morning, my family Dr. came to see me. I heard him talking to the same nurse that was on the day before when we came in outside the door and hoped she was not coming in to my room with him. When my Dr. asked her if I delivered in Emerg, she said something like “I am not sure.“ I thought how could she say that when she was the one who sent me there to deliver. She did come in with him and stood at the end of the bed. My Dr. said he was sorry for our loss, asked how I was, and talked with me for a few moments. Then he told me I could go home, to make sure to get some rest and come see him in a few weeks to go over how things went. I got my things together and in came the nurse again. She did not have any softness in her tone even now. She said "Well, you were never officially admitted so all I have for you is your white hospital card. You can go" I took the card and tried to muster up the strength to leave behind the only thing that was left that had been in contact with my little Zoe. My hospital gown. I held it for as long as I could, tears pouring down my face, knowing I could not take it with me. It took all I had in me to leave it there on the bed and walk out of the room. I had to force myself to walk out.

We left  the hospital with nothing . No baby, no pictures of her, no footprints, no little hat, no blanket, no gown, no hand prints, not even any papers saying that she existed. It was the most empty I have ever felt in my life. I left my heart there that day, it felt like it had been torn out. It is bad enough to go through the pain and heartache of giving birth to a baby that you know is not going come home with you, that you are not going to experience life with him or her. Then to have none of the other things to remember them by only adds to the harshness. I understand that they are just things, but when it is all you have left of that precious life, those things become very important. The nurse in Emerg offered us compassion, kindness and understanding, the nurse on Women’s Health offered me only coldness in what was the single most difficult moment of our lives. Our baby should have been treated, dead or alive, with honor and dignity. The nurse on Women’s Health offered Zoe none of that.

Yes, there were moments we will always treasure that we got to spend with our angel. I wouldn't trade them for the world. 

Addition to blog entry:
The resolution of this situation from the medical field's standpoint: 
After my letter was delivered, I received phone calls that morning from the head of L&D, the Quality of Care Coordinator for the health region, and my Dr.'s office.
They all expressed their sincere apologies for the experience and I was assured the situation would be looked into further and the nurse dealt with.  The head of L&D and the QCC both assured me that this was not the norm whatsoever, in fact it was the complete opposite.  I was told that the situation was going to be addressed at upcoming meetings with the hospital board and the staff of L&D, and that policy changes would be made so that this would not happen to anyone else in future.  I was given a little arm bracelet that is normally given in these situations and also I was given a beautiful Willow Tree statue of a Dad, Mom and baby. The head of L&D said she knew that by no means did this make up for how things unfolded, but that she wanted to give something to show how sorry she was on behalf of her department. While I appreciate very much the efforts of the QCC and the head of L&D, I have not once heard anything at all by way of an apology from the nurse who treated us so unkindly that day…makes me wonder if she even thinks she did anything wrong.





Michelle Dueck
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